Wednesday, August 20, 2008

Addisen Eleanor Update


Addisen is doing great.  She now weighs 20 lbs. and is 13 months old.  She took her first steps just one week after she turned one.  She was accepted to DDD (Division of Developemetal Disabilities) back in June so we currently have a Speech/Feeding Therapist, Developmental Specialist, Occupational Therapist and a Physical Therapist.  Luckily they are all in home as of September 22nd.  I have been driving to Scottsdale several times a week for all her therapy. Luckily my mom has been there to help with Dilan and Haylee.  We have had a rough road but it is getting so much better.  I think Addie will be on the G-Tube for awhile.  She won't drink anything but water. When we have forced milk (gently) she projectile vomits it up.  She had an allergy panel done and the only thing that came up was pork, so we are not sure why she has a problem with milk when she can eat cheese, yogurt and ice cream without a problem.  Her appetite has increased but she still doesn't eat a whole lot.  My goal is to have her off her G-Tube by our Disneyland trip in March.

Addie's MRI came back clean in June.  Her CT Scan and EEG was also normal back in September of 07'.  She had one seizure when she was 2 1/2 months old but has not had one since.  The neurologist still suspects that she had a stroke in-utero that has caused her right-sided weakness.  Our wonderful pediatrician Dr. Kanagal told me at her 1 year check-up that she is defying all odds with the quick progress she has made.

1 comment:

I teach . . . said...

Well of course she is defying all odds! She has you for a mommy-- caring, concerned and completely on top of things. Way to go Addie! We are all so pleased with your progress!

Amanda